Home Enteral
Nutrition (HEN) Program
Your baby may need to go
home with tube-feeding as part of their daily routine. You will be supported
during this time by The Royal Children's Hospital (RCH) service called the Home Enteral Nutrition program or
‘HEN’. Prior to discharge you will meet with your Dietitian who will register
your baby on the HEN program and organise training, equipment and review
following discharge. Your Dietitian will also work with you to wean tube-feeds
at home if/when your baby is ready.
If your baby's main medical
care is moved to another hospital, the dietitian will liaise with the new
hospital to plan future HEN supplies with them.
When you go home you will be
given a list of equipment you will be entitled to each month, your baby's
formula recipe (if required), a booklet about your baby's tube-feeds and
relevant contact numbers.
If your baby is eligible for
the National Disability Insurance Scheme (NDIS), your Dietitian can work with
you to ensure that your baby’s tube-feeding equipment needs are included in
their package.
Other supports
There are other supports
available in the community (outside of hospital) to help you monitor your
baby’s feeding and growth.
These include: the RCH Hospital-in-the-Home (HITH) and Post-acute Care (PAC).
HITH and PAC nurses can
weigh your baby at home and provide general advice on feeding. The Wallaby team
can help if your baby has been having tube-feeds at home and is ready to
transition to full suck feeds.
Before your baby goes home,
our staff will talk to you about what additional supports you may need and will
arrange these for you.