Christopher's Story - by his Mum, Jenny

Thank you for the opportunity to put pen to paper about our experiences as Christopher was given his "new foot".

We were very fortunate in as much as the school was very accommodating with any aspect of the process, even to the point where we could drive up to the back door or Christopher's classroom where there was a ramp that he could easily manage. The teacher also made a point of a show and tell type of time where Christopher was encouraged to show off his new appliances (plaster, AFO or the frame), so the whole class was involved and understood what the next stage involved.

A good time to get the frame on (we found) was a week before or in the school holidays. This allowed time to get accustomed to the new appliance and also work out any quirks before the routine of getting to school and all that goes with that happens. I know this isn't always going to happen, but it certainly helped us.

Never underestimate a child's resilience to change. They cope better than we do sometimes! They enjoy that little extra attention. Christopher never lost focus of why this was happening and always thought of the long-term gains - he was going to kick the soccer ball straight, or the footy to where he wanted it to go. This, l think, is an individual trait but maybe reinforcement along the way may help some children. The process does have an end and hopefully everyone comes out with a much better outcome that when they started.

The issue of the Disable Parking permit was huge bonus. We went to the footy a couple pf times and the permit made it a most enjoyable day, as we just had to park and not walk far at all.

Our only hiccup was when he got the infection, and that was the only time he hinted at his dislike of his frame. A polo fleece draw sting sack worked wonders in the Winter to keep his foot and leg warm, but also at school so the little preps didn't get a fright at the sight of it. It also helped in bed so the sheets didn't get tangled up in the frame, (Grannies are good at making these!!!).

The frame itself was an easy device to manage in the turning department. Practice is the name of the game  - it does not bite!! And ask questions - l know you don't mind but some people are anxious and feel silly. Leo putting the tags on to show which way to turn was a bonus - you know forgetful mothers who get flustered just need a reminder!!!

The care and thoughtfulness of the hospital staff was exceptional. Prue the Physiotherapist made the exercises easy to understand and all the nursing staff were open to questions. The Orthotic staff we caring and explained everything very clearly.

 We have come away with a very positive experience, and a new foot. I only wish everyone could have as excellent treatment and results as we have had. Our information session with Jacinta was very helpful and l feel covered everything we needed to know at that time. As the process progressed along we were informed of the new elements involved. Never were we left in the dark.

There are some photos here of Christopher at this year's AFL Grand Final, thee can be no stopping some people, and of his frame taken on his way to school. He never missed out on outings as a result of his frame. It may take a little time to get everything organized but well worth it in the end. The only birthday party he missed was a bowling party but he went along and watched the boys bowl and then joined in the party food and the cake. I hope some of this will be useful.

Jenny

ADDITION;

 August 2004-09-01
Christopher is playing football and his team has made the finals - he is very excited. The ball now goes where it is supposed to go now with the "bionic foot"