Neuromuscular disorders

• Spinal muscular atrophy (SMA) - link to AUSNMD website 
• Duchenne muscular dystrophy (DMD)
• DMD information for carriers
• DMD and creatine monohydrate
• Charcot-Marie-Tooth disease (CMT)

Resources for families

• Link to the AUSNMD website 
• DMD advice for schools and carers
• Wheeled mobility in DMD
• Hydrotherapy for children with neuromuscular disorders

Neuromuscular Clinic appointments at The Royal Children’s Hospital

Resources to support you and your child 

• What to bring
• Visiting neuromuscular clinic - plain language summary
• Visiting neuromuscular clinic - social story
• Clinic passport (link to AUSNMD website)
  
  
• Updated referrals: a referral from your GP is required every 12 months
  

If you are seeing a physiotherapist

• Visiting the physiotherapist in neuromuscular clinic - social story 
  
• Wear clothes suitable for exercise or physical assessment (eg trainers, t-shirt and shorts or tracksuit)
• Bring any splints or orthotics so they can be reviewed
• Bring contact details for school or community therapists 

If you are seeing a respiratory consultant

• Bring along your CPAP/Bi-PAP equipment to ensure the machines are regularly serviced and to check for adequate mask fit

Other information

• Please take a look at the Specialist Clinics page