This page is designed to be used in the consulting room, to provide quick access to commonly used resources for the management of patients with seizures and epilepsy, and for the education of patients and families.

For parent/carer information about seizures, epilepsy, diagnostic tests and treatments for epilepsy, refer to the patient information pages.

EEG resources

• RCH EEG request (for external referrals only)
• Please read our EEG pre-referral guidelines before requesting an EEG at RCH
• Instructions for sleep deprivation (usually given to parents when the appointment is made)
• External EEG services (may have shorter waiting times or accept referrals that we don't)

Resources for the management of epilepsy

• RCH Seizure Diary
• Epilepsy Management Plans (Epilepsy Smart Australia)
  
• ED/Hospital Seizure Management Plan for Clinicians (for children with complex epilepsies, does not replace Epilepsy Management Plans)
  • Seizure management plan for clinicians 1 exacerbation type
  • Seizure management plan for clinicians 2 exacerbation types
• AustRoads assessing fitness to drive standards for seizures and epilepsy (revised June 2022)
• VicRoads Medical Report form
• VicRoads Medical Report online (preferred)
• Victorian Patient Transport Assistance Scheme: VPTAS
  

Resources for antiseizure medication (ASM) prescription

• Guidance for ASM dose titration in generalised and focal epilepsies (SANAD II study protocol)
• Guidance for ASM dose titration in childhood absence epilepsy (NEJM CAESG study protocol)
• MIMS (Intranet only)
• Pharmaceutical Benefits Scheme (PBS)
• RCH A-Z of antiepileptic medications
• Tablet and capsule identification guide   
  
• RCH Neurology Prescribing Information (Intranet only)
• Medication dosing schedule (external use only - inside RCH use EMR smart phrase)
• Easidose picture based prescribing (RCH Immigrant Health Service)
  
• Villa Maria (respite care) Medication prescription
• RCH Adverse Drug Reaction Report (Intranet only)
• Valproate in women and girls position statement and checklist (ESA October 2019)

Patient education materials

• Seizure First Aid Fact Sheet (Kids Health Info)
• Seizure First Aid A4 Information (Epilepsy Foundation of Victoria)
• Midazolam Fact Sheet (Kids Health Info)
  
• Teaching children to swallow tablets and capsules booklet (RCH Pharmacy)
• Epilepsy syndromes (Epilepsy Action, UK)
• Infantile spasms parent information booklet (Dr John Osborne, 2006)
• RCH infantile spasms prednisolone treatment parent information
  
• SUDEP Fact Sheets (SUDEP Aware, Toronto)
• RCH Common questions about epilepsy surgery
• RCH Vagus Nerve Stimulator for Epilepsy information 
  
• Medicinal Cannabis information for consumers (TGA)

Other resources and links

• EpilepsyDiagnosis.org
• The ILAE Commission on Classification and Terminology
• ILAE Guidelines and Reports
• Beyond the Ion Channel (ILAE Genetics Commission Blog)
• Paediatric Epilepsy Network, NSW
• National Institute for Health and Care Excellence: Pathway, Clinical guideline and Quality Standards for epilepsy in children and young people (NICE guidelines, UK)
• Consensus Guidelines for Diagnosis, Surveillance and Management of TSC (TS Alliance)
  
• RCH Ketogenic diet acute illness management clinical guideline
• RCH Management of low Vitamin D (RCH Immigrant Health Service)
• Treatable intellectual disability
• Order Medicare funded exome sequencing Guide and Portal

Updated November 2024